Always Learning

It is crazy to think that over 6 months have gone by since Nora’s T1D diagnosis – some days it feels like we have been her pancreas for years while other days we feel like we are just taking the first steps of this lifelong journey. Here are a few things we have learned along the way and feel compelled to share with the world:
  • Managing T1D for a child that cannot talk is like trying to hit a moving target while blindfolded. Some days we got it (YES!) and other days we are WAY off.
  • If she is having a temper tantrum we check her blood sugars. Big swings in blood sugars can lead to BIG feelings.
  • Just because her blood sugars are low doesn’t mean she is going to sit still or stop playing – find a phone or iPad STAT.
  • You can NEVER overpack snacks – they will always get eaten. Anyone with young kids can understand this one, now multiply it by 10.
  • Technology is a blessing, until it’s not. It helps you sleep better some nights and keeps you up other nights. It gives you comfort, but you’ll be on your phone more often then not checking her numbers and texting her care givers.
  • Always pack extra supplies, and then pack an extra set. Kids are accident prone.
  • Just because you dosed her insulin right at lunch one day, doesn’t mean it will be right the next for the exact same lunch. We have hormones to thank for that!
  • You will become a nighttime ninja by sneaking into her room to check her blood or give her insulin at all hours of the night.
  • Your heart will break with every high, every low, every site change, every CGM change, and every finger prick, but it will grow back stronger after each break.
  • She will grow up to be a patient, determined, grateful, flexible, kind, supportive, healthy, problem solver. I know this because I have lived with and managed my own T1D for over 20 years.

Just A Picture…?

I just spent the last 30 minutes going through my pictures trying to find one that not only fit well on my website header, but was also representative of my Blog name – Type 1 of 3.  I think I uploaded almost 10 pictures – mostly of my three girls, but a couple had me in them and there was one with just my youngest, Nora, and I.  I tried all of them, but none fit well – both literally and figuratively.  After going through this process, I finally settled on the exact same photo I had started with, which by the way, is so typical me.  When I’m on the lookout for something specific, I find what I want but then continue looking in the very rare circumstance there is something I could want even more.  Its called researching all my options, but back to my website…

My header picture is the exact same as it was before renaming my website from My (Extra) Ordinary Life to Type 1 of 3.  Why is it the same picture?  A picture of an ocean and some palm trees doesn’t represent my girls or Type 1 Diabetes.  An even more pressing question – who cares?!  Well friends, I care and this picture has a deeper meaning then just it’s face-value beauty 🙂

This picture was taken in Los Cabos by yours truly or maybe Ryan – I can’t remember and it’s really not that important who took it. What is important is that it is a reminder of a time when life was a lot more simple than it is today. This picture was taken on our first vacation away from the girls since our youngest, Nora, had been born. It turned out that it was also our last vacation before Nora was diagnosed with Type 1 Diabetes. Our lives completely changed after her diagnosis. The first few months were HARD and I grieved for the life that once was. Now, I believe in my heart that Nora’s diagnosis was a gift, albeit a crappy one at times. While, I am no longer grieving for the life we once had, I do miss it at times. Which is why this picture is the perfect one for my blog header – it reminds me to find the beauty in what once was, while moving forward with what is right in front of me.