Always Learning

It is crazy to think that over 6 months have gone by since Nora’s T1D diagnosis – some days it feels like we have been her pancreas for years while other days we feel like we are just taking the first steps of this lifelong journey. Here are a few things we have learned along the way and feel compelled to share with the world:
  • Managing T1D for a child that cannot talk is like trying to hit a moving target while blindfolded. Some days we got it (YES!) and other days we are WAY off.
  • If she is having a temper tantrum we check her blood sugars. Big swings in blood sugars can lead to BIG feelings.
  • Just because her blood sugars are low doesn’t mean she is going to sit still or stop playing – find a phone or iPad STAT.
  • You can NEVER overpack snacks – they will always get eaten. Anyone with young kids can understand this one, now multiply it by 10.
  • Technology is a blessing, until it’s not. It helps you sleep better some nights and keeps you up other nights. It gives you comfort, but you’ll be on your phone more often then not checking her numbers and texting her care givers.
  • Always pack extra supplies, and then pack an extra set. Kids are accident prone.
  • Just because you dosed her insulin right at lunch one day, doesn’t mean it will be right the next for the exact same lunch. We have hormones to thank for that!
  • You will become a nighttime ninja by sneaking into her room to check her blood or give her insulin at all hours of the night.
  • Your heart will break with every high, every low, every site change, every CGM change, and every finger prick, but it will grow back stronger after each break.
  • She will grow up to be a patient, determined, grateful, flexible, kind, supportive, healthy, problem solver. I know this because I have lived with and managed my own T1D for over 20 years.

Wanted: Accountability!

I’m sitting here waiting for my oil change to be done and thinking about how much life has evolved for me over the last few months. Last year, my days were filled with diapers, snacks, errands, and all the adulting. Now they are filled with all of that plus carb counting, needles, and more technology than I ever expected. Nora’s T1D diagnosis last December lit a fire in my belly – a fire I needed more than ever. Now don’t get me wrong, I would LOVE for her to lead a life without T1D. I would love to lead a life without T1D too! It’s not something either of us had a say in, but we move forward and make the most of our circumstances while trying to have a little fun along the way.

I think this is why I have become more active on social media and sharing our T1D stories. I am having fun educating and helping people understand the literal ups and downs with this chronic disease. I’ve been following others on their journey and I can totally relate to the stories they share. I hope that the stories I post are ones others can relate to or can learn from, but for me sharing our story on social media helps keep me accountable.

If you are a parent you understand that you need to fill your cup before giving to others. I STRUGGLE with this on the daily! Not just with self-care, but, before Nora’s diagnosis, the daily management of my T1D. I would eat when I could, forget to take my lunch time bolus, or just generally be lazy with the day to day management of my T1D. But then Nora was diagnosed and she forced me to be better…be better for her management AND mine. I need to ensure I am taking the best care of myself so that I can continue to help her through her T1D journey.

So thank you social media for helping to keep me accountable and for bringing us a little closer to those who have similar experiences.

2 years in 200 words

To get all y’all up to speed here’s what has happened over the last 2 years in 200 words and no particular order:

-Got certified as a group fitness instructor and taught BootCamp style classes 2x’s per week

-Put our travel pants on and went to the Ozarks (with kids), Austin (no kids), and London (no kids).  

-Became a runner (what the what?!). 

-Ran my first half marathon and did not die

-Had a third baby girl (yes – we chose to have a third child who ended up being a girl). 

-Got my zen on by becoming a member of a local yoga studio

-Did at least 500+ loads of laundry (that should be a Guinness world record right?!)

-Celebrated 12 years of marriage to the same person, whom I have also known for 18 years!

-Aquired the status of Aunt for the second time 

-Changed a semi-truck worth of diapers (another Guinness record?!)

-Watched the Cubs play in the World Series 

-Helped (very loose term) my parents move 15 minutes away

Beyond that, my goal continues to be keeping my 4 year old, 2 year old, and now 4 month old alive.  Easy, peasy right?!  Some days are tougher than others! 😳

You know your a diabetic mommy when…

-You have as many snacks in the diaper bag as your 2 year old.

-Your glucose tablets are affectionately known as Mommy’s Candy.

-Your 2 year old knows how to open your blood glucose meter case and put a strip in the meter.

-You get as excited about getting new equipment (insulin pump, blood meter, etc.) as your 2 year old does about getting a new book (Little Miss LOVES books!)

-You don’t share food with your 2 year old because you already carb counted to take the appropriate amount of insulin and sharing with her means setting yourself up for a future low blood sugar.

-You have as many wellness appointments per year as both of your children combined.

-You get up in the middle of the night more than your 2 year old and 4 month old in order to check your blood sugars

-Your glucose tablets are strategically stashed next to your 2 year olds snacks in the car(s) and the stroller(s).